BC Ends Funding for $1M Drug Ineffective in 9-Year-Old’s Rare Disease
The British Columbia government announced the termination of funding for nine-year-old Charleigh Pollock’s $1 million-per-year Brineura treatment for CLN2, a rare and terminal disease. This decision, based on Health Minister Josie Osborne’s statement, stems from independent expert review concluding Charleigh’s condition has progressed beyond the point where the drug effectively slows disease progression. While acknowledging the family’s distress, the ministry cited clinical criteria established by Health Canada’s drug agency as the basis for this funding cessation. The family, however, maintains that Charleigh continues to benefit from the medication and urges the province to reconsider.
John Q. Hosedrinker